Living with Long Covid (also known as Post Covid)

This page has been created to support people who have been dwoman headache.jpgiagnosed with Long Covid Syndrome (also known as Post Covid). If you are experiencing, or have been diagnosed with Long Covid symptoms, then this site is here to help you manage your condition.

The page features information on symptoms, support available, answers to questions you may have, as well as advice and shared experiences from other people.

If you’re a patient in North West London and you think you may have symptoms of Long Covid Syndrome, please make an appointment to see a clinician at your GP practice in the first instance. For urgent problems, please call NHS 111.

What is Long Covid?

For some people, coronavirus (COVID-19) can cause symptoms that last weeks or months after the infection has gone. As well as Long Covid syndrome this is sometimes called post-COVID-19 syndrome.

The length of time it takes to recover from COVID-19 is different for everybody.

Many people feel better in a few days or weeks and most will make a full recovery within 12 weeks. But for some people, symptoms can last longer.

The chances of having long-term symptoms does not seem to be linked to how ill you are when you first get COVID-19.

People who had mild symptoms at first can still have long-term problems.

How common is Long Covid Syndrome?

Around 10% of patients who have tested positive for Covid-19 remain unwell beyond three weeks, and a smaller proportion for months.

 

How long does it last?

The available evidence tells us recovery is different for everyone. Symptoms may persist for weeks or months. That’s why it’s very important to find the right treatment and support. 

There is a lot you can do to help yourself, depending on your symptoms. Click here to find out more. 

 

Why are some people affected and not others?

We don't yet know why some people develop Long Covid syndrome and others do not. Clinicians and researchers are working hard to answer this question.

 

What treatment is available?

Depending on your symptoms, there are different treatments which can support your recovery including:

  • Respiratory (breathing) clinics
  • Physical therapy
  • Speech and language therapy
  • Mental health support
  • Wellbeing support

 

When should I seek urgent medical help?

If you are unsure whether to get medical help with your symptoms then refer to the guidance in Your Covid Recovery When Do I Need To Seek Help? | Your COVID Recovery

 

Can I pass Long Covid syndrome on to anyone else?

Post Covid syndrome is not contagious. Symptoms are caused by your body's response to the virus continuing beyond the initial illness.

 

Can children get Long Covid?

Yes, some children can get long-covid after having covid. This site offers information for parents and children who have long covid.

Long Covid Kids | What is Long Covid Kids? | Long Lasting Covid Symptoms

 

I’m too ill to work, what can I do?

Citizen’s Advice offers support and guidance about what to do when your life is interrupted with covid and it affects your work.

Coronavirus - if you're worried about working - Citizens Advice

Returning To Work | Your COVID Recovery

 

Where can I find local long-covid assessment clinics in North West London?

There are Long Covid assessment clinics running from :

St Marys Hospital

Charing Cross Hospital

Chelsea & Westminster Hospital

West Middlesex Hospital

Central Middlesex Hospital

Some of the common lasting symptoms of coronavirus can include:

  • fatigue
  • breathlessness or shortness of breath
  • difficulty sleeping
  • anxiety and depression
  • heart palpitations
  • chest tightness or pain
  • joint or muscle pain
  • not being able to think straight or focus (‘brain fog’) 
  • change to your sense of smell or taste
  • persistent cough

The following people have openly shared their experiences of post covid syndrome, which provide some useful information and tips. The hope is that these stories will reassure other people experiencing long covid syndrome and help them find ways of coping with it to aid recovery. 

Kirsten Funes
Anonymous - Mother of 4 boys living with long covid syndrome 
Yannis Psomadakis

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